For the coming 2020 legislative session, House Health Committee chairman Rep. John Mizuno plans to introduce a bill that would help local diabetics by capping the price of a 30-day supply of insulin at $100.

Insulin, a hormone produced by the body鈥檚聽, is critical for cellular absorption of glucose. Because diabetics either do not produce enough insulin or are resistant to the amount their pancreas naturally generates, toxic levels of glucose 鈥 鈥渂lood sugar鈥 鈥 can accumulate in their bodies, resulting in organ failure, and eventually, death.

Though treatment for diabetes dates as far back as 400 to 500 A.D. when the Indian physician Sushruta and the surgeon Charaka first discovered聽听补苍诲听, it was not until 1922 that insulin replacement was available as a medical treatment.

For a century, the lives of diabetics have depended on insulin. But unstable prices have lawmakers worried. Danny de Gracia/Civil Beat

Leonard Thompson, a 14-year old 聽diabetic admitted to Toronto General Hospital on January 11, 1922, is the first recorded patient to have received successful insulin medication, when after several series of injections, his blood sugar dropped from 520 milligrams per deciliter to 120 mg/dL.

Thompson鈥檚 case was a medical breakthrough, and in 1923,聽 production began in Denmark and Austria. Today, some 40 manufacturers in 55 different countries produce over 1,985 insulin products across the globe.

While this may seem like a lot, access to affordable insulin is getting increasingly difficult.

The wholesale price of insulin has聽, and while the U.S. market accounts for only 15 percent of the total insulin users, 50 percent of worldwide insulin revenues are made in America.聽聽is commonplace, and minimal competition allows companies to charge almost any price they please.

The Centers for Disease Control and Prevention (CDC)聽聽that women and uninsured persons were likely to ration 鈥 underuse 鈥 their insulin and other diabetes medications as a cost-saving strategy.

The American Diabetes Association Board of Directors convened an Insulin Access and Affordability Working Group in 2017, and concluded, 鈥淧eople with diabetes are financially harmed by high list prices and high out-of-pocket costs.鈥 This , because in the case of Type 2 diabetes, it disproportionately affects persons of lower socioeconomic status.

According to聽, in 2018, almost 1 out of every 10 persons in Hawaii had diabetes. In Hawaii,聽聽on the cost of living,聽, so wild mood swings in both the economy and the pricing of insulin could be deadly for locals.

Horror stories of persons on the mainland paying as much as $1,300 for a month鈥檚 supply of insulin has spooked some policymakers. Mizuno said by phone that he believes Hawaii should follow in the footsteps of Colorado by placing a ceiling on the price of insulin.

Mizuno’s bill, which affects Title 24 of the Hawaii Revised Statutes, would require insurance providers to cap the price of insulin co-payments at no more than $100,聽鈥渞egardless of the amount or type of insulin needed to fill the insured’s prescription.鈥

鈥淭he bottom line is these drugs should be made affordable,鈥 Mizuno said.

Warning that persons who ration insulin because they can鈥檛 afford the co-pay eventually end up in emergency rooms which raise the overall cost of medical care for everyone, Mizuno believes that capping the price of insulin to allow better diabetes management is a common sense solution.

Rep John Mizuno introduces guests in the gallery during floor session on March 21, 2018.
Rep. John Mizuno wants the Legislature to cap the price of insulin at $100 for a 30-day supply. Cory Lum/Civil Beat

As a point in case, in 2016 one of my cousins, a Kaneohe resident who was a Type 1 diabetic, died in the emergency room because of out-of-control blood sugar. Type 1 diabetics can easily experience life-threatening complications even under controlled conditions, but neglecting medication can be fatal.

鈥淭here鈥檚 a strong humanity component to this bill,鈥 Mizuno says, suggesting that this is just one approach to the crisis.

鈥淚 wonder if the state attorney general should look into the pharmaceutical companies to see why the prices are so high. If our state investigates why they are charging so much for insulin, that could open up a whole number of legal actions, similar to what we鈥檙e seeing with the opioid crisis with Oklahoma winning [$572 million] dollars in a settlement in the court case.鈥

In Minnesota last year, pharmaceutical companies over the price of insulin, alleging fraudulent practices where artificially high list prices were set for insulin products. But then lower prices were negotiated to pharmacy benefit managers.

When asked what other legislators might think about his proposal, Mizuno said that the health committee members are very independent, and it might take some effort to convince them and the Legislature as a whole to get on board with the concept.

But he believes that once the public is informed more about the crisis, there could be a groundswell of support. Still, he wants Hawaii voters to know they need to speak up for what鈥檚 right.

鈥淭he pharmaceutical companies are not (going to) be happy,鈥 Mizuno cautioned. 鈥淔or them, as well as anyone else involved in making any type of profit, I鈥檓 going to be public enemy number one and they will have a strong lobbying effort to kill a bill like this.鈥

Read a copy of Rep. John Mizuno’s draft legislation for capping insulin prices:

Support Independent, Unbiased News

Civil Beat is a nonprofit, reader-supported newsroom based in 贬补飞补颈驶颈. When you give, your donation is combined with gifts from thousands of your fellow readers, and together you help power the strongest team of investigative journalists in the state.

 

About the Author

  • Danny de Gracia

    Danny de Gracia is a resident of Waipahu, a political scientist and an ordained minister.

    Danny holds a Bachelor of Arts in Political Science and minor in Public Administration from UT San Antonio, 2001; a Master of Arts in聽 Political Science (concentration International Organizations) and minor in Humanities from Texas State University, 2002.

    He received his聽Doctor of Theology from Andersonville Theological Seminary in 2013 and Doctor of Ministry in 2014.

    Danny received his Ordination from United Fellowship of Christ Ministries International, (Non-Denominational Christian), in 2002.

    Danny is also a member of the Waipahu Neighborhood Board, a position he’s held since 2023. His opinions are strictly his own.