Felisa Rapisura of Mililani, 85, wakes up at 3:45 a.m., three times a week, to apply makeup before her dialysis treatments several miles away in Waipahu.

And she considers this schedule an improvement on her old treatment time slot, which ended around 11 p.m.

Rapisura is one of 4,000 Hawaii kidney disease patients on , a life-saving treatment that cleans a patient鈥檚 blood when kidneys fail.听Treatments are usually required three times per week for about four hours.

But patients are听further burdened by a shortage of dialysis centers, in part due to the state’s lagging inspection and certification process.

Fresenius Kidney Care facility with 24 hemo dialysis stations.
Dialysis chairs at a Liberty Dialysis clinic in Salt Lake. Cory Lum/Civil Beat

Rapisura lives near a dialysis center in Mililani that she can鈥檛 use. Even though it was built three years ago, it still awaits certification.

Eighty-five percent of Hawaii鈥檚 dialysis patients are insured by Medicare or Medicaid, two government-run programs. Dialysis center operators can鈥檛 be reimbursed for treating those patients until state inspectors confirm the facility meets federal standards.

The state鈥檚 largest private insurer, Hawaii Medical Service Association, also requires customers to visit federally certified dialysis centers.听An outpatient dialysis session can cost up to $1,500 for the average patient, said Pliny Arenas, an executive with U.S. Renal Care.

But in Hawaii, certifying new dialysis centers usually takes about three years. Most other states take nine to 12 months, according to Steve Nottingham, an executive of Fresenius Kidney Care. Fresenius is the parent company of Liberty Dialysis, one of two dialysis center operators in the state.

Inspecting and certifying new dialysis centers isn鈥檛 a top priority for the short-staffed Hawaii Department of Health, which inspects facilities on behalf of the federal government.听The feds place a higher priority on complaint investigations, for example.

There are 29 dialysis centers statewide, run by either Liberty Dialysis or U.S. Renal Care. Two centers built in 2015, one in Mililani and another Moiliili, are still awaiting certification.

鈥淚f these patients don鈥檛 come (to dialysis) for a week or a month, they鈥檒l die too,鈥 said Rapisura鈥檚 daughter, Mellissa, who drives both her partner and mother to Liberty Dialysis Waipahu for treatment. 鈥淚 don鈥檛 understand the priority list.鈥

The Rapisuras aren鈥檛 the only family inconvenienced by delays in certifying dialysis centers.

鈥淲hy cannot you just get it certified and open them up?鈥 said patient Donald Ortogero, who recalls regularly staying awake until 5:30 a.m. after he had his late-night treatment shift.

鈥淚t鈥檚 very frustrating to drive by the (Mililani) center every day,鈥 said Ken Enomoto, who lives听within walking distance of the uncertified center. Like听Rapisura, he has to drive to the Waipahu center for treatment.

Nestor Marcos, left, and Ken Enomoto are patients at the Liberty Dialysis center in Waipahu. Courtney Teague/Civil Beat

Uncertified facilities are fully stocked but only capable of serving patients with certain commercial health insurance plans 鈥 usually obtained through their employers.

The delays in certifying dialysis centers often force newer patients to take inconvenient treatment slots that interfere with their regular schedules and arrange rides with relatives.

It’s common for patients to feel and unable to drive after a four-hour dialysis treatment.

Other dialysis patients endure lengthy hospital stays due to the shortage of outpatient treatment centers.

鈥淚t鈥檚 hard enough just being on dialysis, but to have to endure the horror stories 鈥 when there鈥檚 a center that鈥檚 open鈥 but not taking many patients, said Glen Hayashida, head of the National Kidney Foundation of Hawaii.听鈥淚t鈥檚 almost like dangling something in front of people.鈥

Unmet Patient Demand

One in seven Hawaii residents, or 168,000 people, suffer from chronic kidney disease. Nationally, the figure is one in nine.

Native Hawaiians, and other Asian and Pacific Islander populations, are especially susceptible to the disease, and they represent a significant portion of the .

About 700 additional Hawaii residents need dialysis treatment every year, according to from the Health Services Advisory Group.

Fresenius Kidney Care dialyzer, this cartridge filters contaminants from the blood like an actual 'kidney'. This dialyzer is atttached to the Hemo Dialysis Machines and the patient sits for four hours during dialysis.
Rose Bombards, clinical manager of the Salt Lake center, displays a cartridge that acts as an artificial kidney, filtering the blood. Cory Lum/Civil Beat

鈥淭he majority of the (patient) growth is on the west side (of Oahu),鈥 said Jocelyn Saccamago, regional vice president of Liberty Dialysis Hawaii. 鈥淭he majority of our clinics are full on the west.鈥

Four new Hawaii dialysis centers with a total of 78 dialysis chairs were certified in the last five years. Other centers have also added chairs in recent years.

A 24-chair center operated by Liberty Dialysis in is one of two dialysis clinics only able to take patients with commercial, or private, insurance policies. Liberty Dialysis did not confirm the number of patients it’s currently able to serve.

A 17-chair center run by U.S. Renal Care in is currently serving two patients. There are 25 patients with insurance through HMSA, Medicare or Medicaid on a waiting list.

Stuck In The Hospital

Many kidney disease patients don鈥檛 know their kidneys are failing until they end up in the emergency room, said Hayashida of the National Kidney Foundation, especially if they don鈥檛 see a doctor regularly.

It鈥檚 not unusual for a patient鈥檚 first treatment to be in the hospital. Some may only have to dialyze in the hospital for a few days until outpatient treatment can be arranged, but others remain hospitalized for a month or longer.

The U.S. will to hospitals that discharge and readmit the same patient multiple times within 30 days. The patient readmission rate is used as a way to determine the quality of a hospital鈥檚 care.

Don Olden, ex-CEO of Wahiawa General Hospital,听has said that dialysis patients frequently receive treatment there while on a wait list for outpatient treatment. 

That effectively means patients who receive dialysis in the hospital are not discharged between treatments since they鈥檙e usually treated three times per week.

This has been a problem for years, according to written testimony to the , which decides whether to allow the construction of new health facilities.

Paula Yoshioka, an executive at Queen’s Health Systems, testified in 2014 that there were听four to six new hemodialysis patients per week seeking placement in an outpatient facility. This drives up the cost of care and needlessly takes up “critical” bed space in the hospital, she wrote.

The same was true for four to eight patients at Straub Clinic and Hospital on any given day in 2014, according to testimony.

Gerlynn Silva, a high school counselor in Mililani, stayed in Kuakini Medical Center for more than a month while waiting for an outpatient slot.听The hospital nurses were all familiar faces, and she often had the room to herself.

But she depleted her sick leave during the hospital stay. Silva鈥檚 coworkers covered for her, but she lost out on pay and the summer break.

鈥淚t was very, very rough,鈥 she said.

Long Commutes, Limited Transportation

If new patients are lucky, they鈥檒l get an outpatient slot at a dialysis center near their home 鈥 but they often have to take early morning or late-night treatment slots that end as late as 1:30 a.m.

Lucinda Bustillos receives dialysis treatment at the Waipahu Liberty Dialysis Center. Lucinda Bustillos

听Many patients with late-night treatment hours must drive themselves or rely on relatives for rides.听

Others are dependent on TheHandi-Van,听a public van service for disabled residents that has limited hours in most parts of the island.

Drivers sometimes arrive ahead of schedule, making patients feel pressure to end their treatment early, some told Civil Beat. Other times, the vehicle doesn鈥檛 come at all.

Dialysis patient Lucinda Bustillos says TheHandi-Van has been late to pick her up on several occasions. She鈥檚 called the dispatch crew to complain enough times that they recognize her name, she said.

鈥淚 feel sickly. I don鈥檛 want to sit here for an hour,鈥 Bustillos said. 鈥淚鈥檝e seen people here waiting for two hours.鈥

听Lack Of ‘Highly Specialized’ Inspectors

The U.S. contracts with the state health department’s听 inspectors, called 鈥渟urveyors,鈥 to ensure health care facilities are eligible to be reimbursed for patients on federal health insurance.

Federal training services are starting to become available online, Ridley said, which makes it easier to train employees. Before, he said employees had to travel to the mainland for training. That meant less time spent inspecting health facilities.

Twelve surveyors are employed by OHCA. Just three or four have received the “highly specialized” training necessary to inspect dialysis centers, said OHCA chief Keith Ridley. A team of two surveyors usually spends four or five days inspecting new dialysis centers, he said.

State surveyors must follow a for inspecting health care facilities. Higher priority inspections include complaint investigations and facilities that haven鈥檛 been inspected in a few years.听Dialysis centers awaiting a recertification inspection can continue serving patients in the meantime.

Priorities are reset every year, meaning lower priority inspections aren鈥檛 always completed and may drop back to the bottom of the list. The state failed to review a single dialysis center in 2014 and 2015.

Dept of Health Keith Ridley listens as Sen Thielen questions him in Capitol Room 16 on care home reports being made public with up to 2 month delay.
Keith Ridley, head of the Office of Health Care Assurance, says听 just a handful of state surveyors have the highly specialized training to inspect dialysis centers. Cory Lum/Civil Beat

Rep. John Mizuno, chair of the Committee on Health and Human Services, introduced 听this year.It听would fund three more full-time health department positions: two surveyors and one supervisor. All three employees could inspect health facilities, but training for these jobs can take two or three years.

“If this bill were to pass and we hired the three permanent staff … that still would not provide adequate coverage for 2019,” Mizuno said.

The health department and the governor’s office are working to fund contractual hires of already trained people from other states to help perform inspections in the coming months, Mizuno said. It helps that the federal government covers 80 percent of the cost because state health departments perform inspections on their behalf, Mizuno said.

The bill now faces a vote before the full House.

Meanwhile, Silva, the Mililani school counselor,听said she鈥檒l have to work later hours next year to accommodate her new dialysis schedule.听 She’ll start her treatments at 6:30 a.m., three days per week.

鈥淚鈥檓 worried that I won鈥檛 be able to give my students the kind of effort and time that I would normally give them because I have to leave earlier just to get to (treatment in) Waipahu,鈥 she said.听听鈥淛ust to see the (Mililani) facility kind of sitting there 鈥 I just don鈥檛 get why they didn鈥檛 open it yet when there鈥檚 so much need for facilities on the island and even the state.鈥

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